Setelah dicheck-check.... finally found a reason..
best gile when you know the cause of something...
1. Thalassemia, Hb-E (not the serius type.. apparently very common in South East Asia)..
So Amir is affected (not carrier, but actually affected)... therefore me and rafiq both must be carriers and/or affected.
Time kitorang kawin, tak wajib lagi test AIDS, thalassemia semua ni...
so what it is is...(sape pakar boleh betulkan)... kurang redblood cells and red blood cells yg ade tak efficient in carrying oxigen around.
also... have to procreate carefully in the future...kena screen potential wife.. coz amir's kids boleh dpt the major thalassemia..
2. Iron deficiennt.... memang aku tau and dah dibebel oleh adik aku... pasal ni...
teringat yg die cakap die kena feed baby kat spital with pure mince meat..
anyways... breastfeeding ni ade sket kelemahan jugak despite being the best option... iron and vitamin D..
maybe coz aku pun ade gene thalassemia ni...susu kurang iron..? i dunno...
tapi dr ckp kalau aku makan iron byk pun, mmg susah nak sampai kat susu...
breastfeeding up to 6-9 month.. iron cukup for babies that age...
after that kena makan diet properly or use iron fortified formula... (ni aku google dr sear and etc)
iron comes from green sayur.. which aku and rafiq tak makan... go figure...
anyways, amir start sakit lepas kena cucuk MMR and masuk nursery.
before that, susah nak sakit...
so bila coupled kan thalassemia hb-e with iron deficient... easy to get infected...
feels so good to know the cause of something kan..?
not just treating illness with parmol and stuff..
pastu ade gak org kata... maybe amir takleh bawak nama die... pasal tu asik sakit..
amir ridhwan nama gempak sangat....
ye ke gempak..? aku dah cuba maintain nama semelayu habis.. and ejaaan tak mengarut sampai takleh pronouce...
takde pun cam nama omputih ke ape... gempak ke?
mungkin tang amir tu... "raja/leader" tu gempak sgt..?
aku tgk org nama amir yg lain ade je hampeh and tak macam "amir"..
entahla, I dont believe it.. but I wont knock it....
mak aku suh amir makan folic acid.. lepas aku google2.. mmg ade suruh...
hebat gak mak aku..... quite medically informed nowadays...
anyways, he is now on iron tablet... senang je nak suh makan..
buat2 cam mende tu gula2.. die pun sebok nak makan...
men, sila komen kat "comments".. bukan kat chatbox
morale of the story:
1. makan sayur everyday.
2. cek your blood for thalassemia (for future generation)
8 comments:
from a technological kind of info. the update that we have on disease is that in near future, everyone would be able screen their genome n be able to determine their health condition from a genetic level through gene screening .
Should be less than a thousand bucks or so....or it can be till hundreds.. , i guess
1. Thal e. Defect in gene for beta globin. Its not tue full expression if b thal. Mainly present as iron deficient after 6 mth because of breakdown of fetal hb. 2. If u r thal e and u r further iron deficient because of diet. After 7 to 8 mth children need solid food. Best source is meat for iron n b12. We will talk abt b12 and folic acid later. It is known that milk breastmilk or formula r poor in iron. Its not so much the level, its iron that not accessible for use hence solid food is essential. MMR is done at 12 mth, my suspicion is that the whole collective event peak at the same time and the child appear to be unwell because of immunisation. 3. Essential nutrient for good red bld cell iron, b12 and folic acid. Having low b12 give u diff anemia. But all if them can exist at the same time. If one decide to go vegan , its important to consider b12 because it exist in meat only, ppl may need b12 inj. 4 thallesemia e is not bad but if amir decide to get married to another thal e there 25% chance a full expression may occur, thats the issue children req lifelong transfusion risk and complication, very2 messy. Get tested and be prepared. If u say god will im gonna kick that person in the head. God will u have a brain use it and consider the whole pic.u can marry a drug addict knowing they can be a change person or still an addict. U dont want that knowledge before. Thal u r commiting another persons life to a transfusion, have a brain n at least think abt it.
The worry abt genomic testing is gattaca and purism, we need to find Balance or else may lose our humanity in the persuit of perfection. Who to say deaf person or the amputee is the disable. Some strive in em and aspire normal able to see outside the physical perfection.
Comment appear weird because of my shit iphone performing shitty spellcheck changing them without my permissipn
aah..i also have that thing.. tingat masa 1st pregnancy, the gynaes dok la cucuk tangan aku tetiap bulan nak monitor Hb aku yg sangat rendah wic was 8!ingat anaemia jek..so puas la makan iron tablet sampai 3 bijik 3 times a day. consticpation toksah cakap la..but Hb reading still an 8..
alhamdulillah takde apa but 2nd pregnancy, Hb normal plak at 11..i am baffled!..
dah lama nk tanya what happent to amir.. tp alhamdulilah dah tau punca n ada penyelesaiannya.. syukur di zmn teknologi on the finger ni mudah dpt ilmu n bleh wat research sendirikan.. i pun i ank sakit apa2(izz ellergy to egg n asyraf pernah warded in nicu bcoz of jaundis n G6PD deficiencies n now ecxema plak)we all akan search n google sana sini.. n bleh dikatakan semua yg ank2 i kene tu disebabkan genetic.. apapun setiap penyakit ada ubatnya.. xtaula.. until now izz xleh mkn kek sbb elergy to egg.. so no birhtday kek.. siankn.. huhuhu
hump rereading my comment the last bit was a generalisation n was not intended for u. Im kinda fedup with some stupid ignorant ppl so anti testing.
Just read ur last bit , amir on tablet. Uhm its first thing in the morning without food and with some acidic drink like orange juice. N watch for constipation. The joy of toilet training will be a nightmare. They can quickly connect pain to toileting and refuse to go toilet and result in more constipation. Ive seen parents cry cos of this its not fun cos despite tummy pain they still refuse toilet. Natural food the best go for meat for iron source.
patut la amir dah nampak kurus, ciyannn dia sakit..
Ahh i did not even pegi cucuk MMR for hannah sebab hari tu dia major allergic telur, so we've been postponing.
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